WALL OF SOUND
We all have a revenge to take and a victory to win
Directed by Laurent B-VIOTTI
Detailed Project Outline :
My name is Laurent B-VIOTTI, I work as a writer / director and producer for film and television. I produced several films selected in many festivals in France and internationally in association with different diffusers (CANAL +, CINECINEMA, TPS, 13ème RUE, MCM).
In 2006, I became the father of a little boy: Nino 9 years old, profoundly deaf and Bi-Cochlear Implanted.
Today I am presenting a very personal film to raise awareness of this dramatic life handicap affecting numerous children."
Today, I am asking you to accompany me through this journey to eliminate the taboos, break the barriers and chains tying families, and to escape through this story. For this, we must cross "The Sound Barrier"
2) THE ORIGIN OF THE PROJECT:
Nino was born deep bilateral deaf on August 17, 2006. Victim of a genetic abnormality, the diagnosis was confirmed in 2008. To overcome his handicap, Nino had a cochlear implantation for the first time December 11, 2008 ... a second time in 2011 and a third time in 2014 ... a new life for him, for us.
The cochlear implant operates as a true "Artificial Ear" via electrodes placed in the inner ear,; it directly stimulates the auditory nerve, by electrical impulses controlled by a microprocessor. Nino will never really belong to the world of deaf, nor of the hearing one as well.
He will always live halfway in-between and often confront this invisible wall, the "Sound Barrier".
"If they laugh at you one day because you're different, because you're deaf, you say you're lucky ... you're lucky because you have implants to hear as I have glasses to see, but for the stupids, there is nothing, nothing that would help ... You see, stupidity is the only real handicap in life ... a stupid always will be a stupid and can never change this state... That's why you're lucky ... "
Excerpt from a discussion with Nino
3) LA CRÉATION DE NEWEARLINE :
When you are unexpectedly affected by a disability, no matter how positive you are, you are confronted by indecision, loss, and the crippling feeling of being powerless for your own child. there are so many doubts, questions. We need access to a support group to be able to address these and quickly go to the essential, the right decisions, the empathic support of others.
"Cochlear Implant, a hope come true"
NEW ADDRESS OF ASSOCIATION DONATIONS:
21 PLACE DU FORON
74950 Scionzier / France
It is 8:00 am, you are at TROUSSEAU hospital in a waiting room, amid other disabled children,. You see a child with a cochlear implant. This is the first time you see one . You pray to God with all your might for it not to happen to you. Your perception of disability is still constrained by the fear of having to be confronted. You dare not look at this reality which, anyway, you do not fully comprehend.
When your child's deafness diagnostic is confirmed, your world crumbles, a part of you, your mutual past, souvenirs have been erased. You suddenly become fully aware of this sensory privilege, hearing. You experience a mourning FLASHBACK on past moments: a concert, a show, a song you shared with your child, a story you narrated at bedtime before he fell asleep and ... you said: "sHIT, why him, why me !!! ".
Soon you step enter a complicated medical and administrative protocol. Life changes, you adapts. One is not better than before, or worse, there is no choice ! You finds yourself facing society; Your eyes open on a different reality. You are being told who is disabled, who isn't ; without knowing why, you are now categorized!. Your learn quickly who are your true friends, and often chocked by "friends" you thought you knew.
Facing the disability, you march forward without thoughts; at least, you march forward...
Right away, you are submerged by thousands of medical appointments in a very short 4 months period. You mark the days to the surgery. Many questions remain unanswered. You do not dare think of the future; you only know it will be a long journey.
A Hi-Tech Xmas tale for the deaf !
It is December 2008. Nino will be receiving his implant. For Nino to be able to hear and speak one day, there is no other solution today. So, you believe you have made the right choice... with no other possible choice... Tomorrow, his internal ear will be permanently replaced by electrodes. It will be a long night...
4 hours of surgery to prepare Nino to receive this hearing technology! He now wears 22 electrodes wound in the chochlea and connected to a processor. In 2008, the bi-location is not yet an option. Nino will have to follow a second protocol. He has to rest for 1 week in his hospital room has the procedure carries a meningitis risk.
One day before his release, we bring you the box containing Nino's implant and accessories (batteries, antenna, batteries, dehumidifier etc ...), and a plush, a Koala, also with an implant.
Several weeks will elapse before the implant activation . A few weeks to heal but also to participate in several speech therapy and start learning the LSF (Sign Language). You learn a few words to sign: dog, cat, sheep, hen, train, eat, drink, please, thank you, mum, dad ...
The big day arrives, the implant activation is scheduled at 10 o'clock this morning. When Nino was born, he did not cry and I do not recall that he cried. Today it is a second birth and we do not know at all what will happen. We can't wait. There are always two ways to live life, one is as though nothing is a miracle, the other is as though everything is a miracle. In a few moments he will rediscover the world and hear us for the first time ... I will keep forever the memory of that magical moment.
Your perception of disability has changed and you know that a new life will begin. You are now less apprehensive, as if this new reality has always been there.
I'll tell you something you already know. The sun, rainbows, this is not the world! There are real storms, heavy events, and as big and strong as you are, life will put you on your knees and leave you like that permanently if you let it. You, me, anyone, nobody hits as hard as life. What matters? It's not be a good or heavy hitter, What matters? the important thing is to get hit and stand back up and go ahead anyway, is to never, never falter. That's how you win !!!
4) TOMORROW ON THE WALL DONE
It took me ten years and living through 3 medical protocols to find the necessary energy and desire to make a "back to the future". To be convinced to share a positive experience and bring an objective view of deafness and the implant through a movie.
It is well understood with the heart ...
I chose to tell you this story, through an initiation journey to retrace our footsteps and rediscover the road traveled. To meet other people, gather their hopes, break the sound barrier ... This film will bring together several testimonies to share and inform the many people affected by deafness and cochlear implants ...
Nino's best school buddy demonstrates him relationship with him to assist in the making of this film.
Alex Fischer thank you and thank you all.