Who am I? I am Corinne and I am a Volunteer for the French Association of Patients with Porphyria. For the past few years, I have wanted to invest in a structure to help others, and naturally I turned to this association, knowing it personally. These diseases are painful and insulating for patients, so being able to create this day of encounter is an essential point for me. If you would like to learn more about these diseases, such as PPE: Https://