Le tour du monde en train de Sacha

Le tour du monde en train de Sacha est le rêve d'un papa photographe et de son fils Sacha, atteint d'une maladie rare, le syndrome de Williams Beuren : faire un tour du monde en train et ramener de cet incroyable voyage, des photos, film, etc. Sacha et Franck savent qu'ils partent le 10 mai, jusqu'où iront-ils ?

Project visual Le tour du monde en train de Sacha
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120
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04/11/2012
End date
€8,076
Out of €8,000
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L'Esprit du Monde supports the project Le tour du monde en train de Sacha

Le tour du monde en train de Sacha

<p><strong>Un photo reporter, un enfant "différent", une maladie rare, une passion des trains et des voyages, une énergie et une solidarité venant de tous les horizons, voilà les ingrédients de ce projet.</strong></p> <p> </p> <p>Il y'a deux ans, Sacha passait énormément de temps devant des vidéos de train et demandait souvent à aller regarder passer les trains. Franck s'est dit qu'un tour du monde en train était la solution pour lui ouvrir une fenêtre sur le monde et ouvrir au monde une fenêtre sur la maladie de son fils.</p> <p>Le projet était né : 158 jours pour découvrir à deux le monde, aller à la rencontre des autres, des différentes cultures mais aussi mettre ce voyage au service du syndrome de Williams Beuren. Cʼest une maladie très peu connue et très souvent dépistée tardivement, ce qui a dʼailleurs été le cas pour Sacha, le diagnostic nʼa pu être posé quʼil y a 2 ans.</p> <p> </p> <p><strong>De ce projet veulent naître, un documentaire, un portfolio, un récit à quatre mains, un carnet de voyage, un blog, des expositions photographiques au service de Sacha, du public, de la maladie et de tous les professionnels qui aimeraient proposer une extension.</strong></p> <p> </p> <p><strong>L'association qui porte le projet </strong></p> <p> </p> <p>C'est une toute jeune association tourangelle dont les objectifs sont :  </p> <p>Permettre la réalisation du rêve d’une personne atteinte d’une maladie génétique et plus particulièrement celles méconnues du grand public.  </p> <p>Permettre la connaissance et la reconnaissance publiques de maladies génétiques par tous les moyens d’information.</p> <p> </p> <p>Site de l'association : <strong><a href="http://genereves.asso-web.com/">http://genereves.asso-web.com/</a></strong></p> <p>Site du projet : <strong><a href="http://www.voyagedesacha.fr/">http://www.voyagedesacha.fr/</a></strong></p> <p> </p> <p><strong>L'itinéraire complet de notre voyage  </strong></p> <p><strong><br></strong></p> <p><img src="http://web.me.com/atelierboucher/Site_4/CARTE_files/shapeimage_2.jpg" alt="" width="573" height="397"></p> <p> </p> <p> <strong>Départ d’Amboise : le 10 mai 2012</strong> </p> <p> </p> <p>Nombre total de km parcourus : <strong>80 469</strong></p> <p> </p> <p>Nombre de km en train : <strong>45 195</strong></p> <p> </p> <p>Nombre de km en avion : <strong>30 734</strong></p> <p> </p> <p>Nombre de km par la route (bus ou voiture) : <strong>4 540</strong></p> <p> </p> <p>4 continents parcourus : Europe, Asie, Afrique, Amérique </p> <p> </p> <p>22 pays traversés : France, Italie, Autriche, République Tchèque, Pologne, Biélorussie, Russie, Angleterre, Mongolie, Chine, Népal, Kenya, Tanzanie, Zambie, Zimbabwe, Afrique du Sud, Chili, Argentine, Bolivie, Pérou, Etats Unis, Canada.</p> <p> </p> <p> </p> <p>86 villes étapes : Paris, Nice, San Remo, Gènes, Innsbruck, Vienne, Brest, Varsovie, Minsk, Smolensk, Moscou, Saint Pétersbourg, Irkoutsk, Oulan-Bator, Pékin, Shanghai, Lhassa, Katmandou, Saunali,Gorakpur,Vârânasî (Bénarès), Jalpaiguri, Darjeeling, Calcutta, Bombay, Londres, Nairobi, Moshi, Dar Es Salam, Zanzibar, Mbeya, Kapiri-Mposhi, Livingstone, Victoria-Falls, Bulawayo, Beitbridge, Messina, Louis-Trichardt, Pretoria, Johannesburg, Kimberley, De Aar, Cap Town,Santiago du Chili, Puerto Montt, San Carlos de Bariloche, Viedma, Baiha Blanca, Buenos Aires, Tucuman, Salta, Villazon, Oruro, La Paz, Puno, Cuzco, Machu Picchu, Lima, Quito, Miami, Orlando, La Nouvelle Orléans, Houston, San Antonio, El Paso, Tucson, los Angeles, San Francisco, Emeryville, Sacramento, Reno, Salt Slake City, Denver, Chicago, Milwaukee,  Minnéapolis, Spokane, Seattle, Vancouver, Jasper, Saskatoon, Edmonton, Winnipeg, Toronto, Montréal, Québec.</p> <p> </p> <p><strong>Le parrain du projet : REZA  </strong></p> <p> </p> <p><em>              <img src="http://genereves.asso-web.com/uploaded/photo-mark-thiessen-national-geographic-hd.jpg" alt="" width="500" height="344"></em></p> <p> </p> <p>Reza est l’un des reporters-photographes les plus reconnus de sa profession sur la scène internationale. Contraint à l’exil de son pays natal, l’Iran, en 1981, Reza vit aujourd’hui à Paris et parcourt le monde depuis trente ans, du Bosphore à la grande Muraille de Chine, du Cap à la Camargue, témoignant des blessures et des joies de ceux qu’il croise sur sa route.</p> <p> </p> <p><strong>« Le monde est mon champ de vision. De la guerre à la paix, de l’ineffable aux instants de poésie, mes images se veulent des témoignages de notre humanité sur les routes du monde. »</strong></p> <p><strong> </strong></p> <p>Site de REZA : <strong><a href="http://rezaphotography.org/">http://rezaphotography.org/</a></strong></p> <p></p><h2>Qui suis-je ?</h2><p><span style="font-size: 14px;"><span style="font-family: courier new,courier,monospace;"><em><strong>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; <img style="vertical-align: middle;" src="http://genereves.asso-web.com/uploaded/386277-2874973954999-1279448401-3079662-724283174-n.jpg" alt="" width="320" height="240" /></strong></em></span></span></p> <p>&nbsp;</p> <p style="text-align: justify;">&nbsp;</p> <p style="text-align: justify;"><strong>Je suis Sacha</strong>, j'ai eu 13 ans le 30 novembre 2011, je suis n&eacute; avec le syndrome de Williams Beuren, qui me restreint dans mes facult&eacute;s cognitives.</p> <p style="text-align: justify;">En effet cette maladie allie un retard de d&eacute;veloppement psychomoteur, des difficult&eacute;s d&rsquo;apprentissage mais aussi une hyper sociabilit&eacute;.&nbsp;</p> <p style="text-align: justify;">M. Ravel, P&eacute;diatre dit des personnes atteintes de mon syndrome :</p> <p style="text-align: justify;">&laquo; Les patients porteurs de ce syndrome pr&eacute;sentent des traits communs qui constituent de pr&eacute;cieuses qualit&eacute;s humaines : ils sont gais, sociables, pleins de vie, affectueux, ils aiment la musique et ils contribuent ainsi activement &agrave; att&eacute;nuer les soucis de leurs parents. On pourrait dire que, par une de ces dispositions dont la nature a le secret, ils sont les mieux plac&eacute;s pour s&eacute;cher les pleurs qu&rsquo;ils ont pu faire couler &raquo;.</p> <p style="text-align: justify;">Et oui je &nbsp;suis un enfant &laquo; diff&eacute;rent &raquo;, tr&egrave;s vivant, tr&egrave;s aimant et tr&egrave;s sociable, curieux de tout, j'aime effectivement la musique mais ma grande passion, ce sont les trains !</p> <p>&nbsp;</p> <p>&nbsp;</p> <p>&nbsp;</p> <p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; <img style="vertical-align: middle;" src="http://souriresnomades.fr/wp-content/uploads/2012/01/sacha-dessin-350x350.jpg" alt="" width="350" height="350" /></p> <p><!--[if gte mso 9]><xml> <o:OfficeDocumentSettings> <o:RelyOnVML /> <o:AllowPNG /> </o:OfficeDocumentSettings> </xml><![endif]--><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> 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mso-para-margin-right:0cm; mso-para-margin-bottom:10.0pt; mso-para-margin-left:0cm; line-height:115%; mso-pagination:widow-orphan; font-size:11.0pt; font-family:"Calibri","sans-serif"; mso-ascii-font-family:Calibri; mso-ascii-theme-font:minor-latin; mso-fareast-font-family:"Times New Roman"; mso-fareast-theme-font:minor-fareast; mso-hansi-font-family:Calibri; mso-hansi-theme-font:minor-latin;} --> <!--[endif] --></p> <p class="MsoNormal" style="text-align: justify; line-height: normal;">&nbsp;</p> <p class="MsoNormal" style="line-height: normal; text-align: justify;"><strong>Je suis Franck,</strong> j'ai 36 ans et je vis en Touraine avec mon fils, je suis photographe et je me pr&eacute;destinais au grand reportage au moment o&ugrave; Sacha a rejoint ma vie &agrave; temps plein, il y a bient&ocirc;t cinq ans. Je me suis donc retranch&eacute; vers une photographie plus illustrative et petit &agrave; petit vers une d&eacute;marche artistique contemporaine de la photographie et cela encore pour quelques ann&eacute;es le temps que Sacha grandisse et prenne son propre chemin de vie. Apr&egrave;s, je pense rejoindre des photographes qui courent le monde arm&eacute; de mon objectif, pour d&eacute;noncer la barbarie et rendre hommage &agrave; toute la beaut&eacute; du monde.&nbsp;</p> <p class="MsoNormal" style="line-height: normal; text-align: justify;">Site de Franck : <strong><a href="http://web.me.com/atelierboucher/officiel/Accueil.html">http://web.me.com/atelierboucher/officiel/Accueil.html</a></strong></p> <p><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:TrackMoves /> <w:TrackFormatting /> <w:HyphenationZone>21</w:HyphenationZone> <w:PunctuationKerning /> <w:ValidateAgainstSchemas /> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:DoNotPromoteQF /> <w:LidThemeOther>FR</w:LidThemeOther> <w:LidThemeAsian>X-NONE</w:LidThemeAsian> <w:LidThemeComplexScript>X-NONE</w:LidThemeComplexScript> <w:Compatibility> 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Name="Medium Grid 3 Accent 1" /> <w:LsdException Locked="false" Priority="70" SemiHidden="false" UnhideWhenUsed="false" Name="Dark List Accent 1" /> <w:LsdException Locked="false" Priority="71" SemiHidden="false" UnhideWhenUsed="false" Name="Colorful Shading Accent 1" /> <w:LsdException Locked="false" Priority="72" SemiHidden="false" UnhideWhenUsed="false" Name="Colorful List Accent 1" /> <w:LsdException Locked="false" Priority="73" SemiHidden="false" UnhideWhenUsed="false" Name="Colorful Grid Accent 1" /> <w:LsdException Locked="false" Priority="60" SemiHidden="false" UnhideWhenUsed="false" Name="Light Shading A--></p>

Allocation of funds

<p> </p> <p> </p> <p>Le budget prévisionnel de ce projet est de 61 000€ pour la totalité du voyage. </p> <p> </p> <p>Nous avons bien entendu contacté des partenaires pour nous aider à réaliser ce rêve qui est porté par l'association Générêves. </p> <p> </p> <p>Pour le moment nous sommes toujours en attente des réponses de nos futurs sponsors ou mécènes et la date approche à grands pas.</p> <p> </p> <p>A ce jour nous venons de collecter des fonds qui nous permettent d'aller jusqu'à Pékin, un autre partenariat ajouté aux 8 000 € que nous voulons collecter ici, nous pemettra d'arriver à Cap Town.</p> <p> </p> <p><strong>Si vous nous donnez 1 euros nous ferons 1.4 km de plus (tout compris : transport, hébergement, repas, frais divers  pour 2) et  bien sûr si nous dépassons l'objectif de 8 000 € grâce à vous, nous continuerons le voyage.</strong></p> <p> </p> <p><strong>Au retour de notre périple les photos faites dans tous les pays traversés feront l'objet d'une exposition, dont nous vous proposons d'avoir les tirages dédicacés et signés en contrepartie d'un don de 350 €. Toujours dans les contreparties vous bénéficierez de tirages et d'originaux des quatre oeuvres ci-dessous.</strong></p> <p> </p> <p><strong>"SACHA PETIT PRINCE"</strong></p> <p> </p> <p><img src="http://web.me.com/atelierboucher/officiel/Accueil_files/shapeimage_2.jpg" alt="" width="562" height="418"></p> <p> </p> <p> </p> <p><strong>"LE MONDE SELON SACHA"</strong></p> <p><strong><br></strong></p> <p><img src="http://web.me.com/atelierboucher/PHOTO1/MIFE_files/shapeimage_2.jpg" alt="" width="563" height="275"></p> <p> </p> <p> </p> <p><strong>"LE GRAND VOYAGE"</strong></p> <p> </p> <p><img src="http://web.me.com/atelierboucher/PHOTO2/MLIFE_files/shapeimage_2.jpg" alt="" width="569" height="182"></p> <p> </p> <p> </p> <p><strong>"LE VOYAGE DE SACHA"</strong></p> <p> </p> <p><img src="https://fbcdn-sphotos-a.akamaihd.net/hphotos-ak-ash4/p480x480/423249_3120510133250_1279448401_3203367_792311339_n.jpg" alt="" width="562" height="304"></p>

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€2,000

Le tableau de FB 50*150 "le grand voyage"+ votre nom intégré dans la page remerciements de la plate-forme, le site de Sacha, de l’association Générêves et dans le livre fait au retour qui racontera l'aventure + invitation nominative au vernissage de l'exposition programmée au retour.
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